Helping Children Grieve

Even very young children are aware of loss and have their own process of grieving based on their understanding. Because children look to their caregivers to learn how to process their losses, caregivers can inadvertently shut down a child’s ability to grieve when they assume the child does not know or is not reacting to the loss.

Children’s television and literature cover common topics of loss like changing schools, moving away from a friend, and losing a pet. With these kinds of losses, caregivers can leverage the child’s understanding of how their favorite characters went through their loss.

The most common temptation for caregivers is to help move the child through the process. Resist the urge to tell the child how much nicer it will be at the new school or that they will make more friends soon. Help the child learn how to be sad in appropriate ways, express their anger at the situation, and find ways to honor their loss.

The topic of death, particularly parent or sibling death, is not common in children’s media. Unless you purposefully seek out these books, you are not likely to find them at your local library or bookstore. Grandparent death is a more common topic, but again not always available on the shelves.

A key difference with parent or sibling death is that you as the caregiver are likely processing your own grief through the process. It’s very different from helping a child deal with their emotions through changing schools since you as the caregiver are not also changing schools.

Children need to know that it’s okay to express their grief with you, and they often want to know that the loss matters to you too. Younger children often want to tell the story of their loss over and over, and this can be an opportunity for you to craft a story together of what you have lost and how you are grieving together.

Dementia Caregiving- Loss Before Death

A diagnosis of dementia in a parent can feel like the beginning of the end. Many caregivers describe the day of diagnosis as the day that they truly lost their parent. It’s an isolating feeling, being with your parent while actively missing who they were.

The changes can highlight these losses. Caregivers are often struck by the sheer difference between their memories of their parent and the current reality. It is incredibly painful to watch a kind, loving person turn nasty during their sundowners and become vicious in their verbal attacks. It is differently painful to watch a strong, independent person become hesitant and withdrawn in their confusion.

The change in role can be difficult to navigate as a parent becomes dependent on their children for caregiving and decision making, and the caregiving child becomes tied down by their parent’s increasing dependence often after many years of living apart.

The issue of caregiving can break families apart as siblings either try to pass the buck to avoid the responsibility or each clamor to put their opinions in the ring and get the care decisions to go their way. As a caregiver, you may feel swamped by hearing from others what you “should” be doing from people who are not willing to lift a finger or send money to help.

All the while, you as the caregiver are navigating the day to day realities of providing care to someone with dementia. It’s not just an opinion to you, it’s your life and reality, and it can feel insulting for someone who isn’t in your situation to think they know better than you what you need to do.

At the same time, you are not just a caregiver. You are a person worth time off, breaks from caregiving, and your own separate life from your parent. There is such a pervasive myth that caregivers should be quietly dedicated to solely providing gentle care to a parent who calmly accepts our aid with gratitude. The reality is so different as you know.

Caregiving can last for years, and too many caregivers come to the end of their parent’s life resentful, burned out, lonely, and isolated. If the totality of your life has been given over to caregiving, you may reach the end of your time at a high risk for suicide.

It is vitally important that as a caregiver you stay connected to your community whether that means staying employed, keeping up with your needs, maintaining your hobbies, and nurturing your relationships. You are important in so many ways, not only for what you are doing for your parent, but in terms of your own intrinsic worth.

Dementia derails the entire family, but mostly the caregiving person. You are essentially losing your parent as you see the person they were giving way to the progression of the disease. You are at risk of losing yourself as well, as you are asked to do more and more for your parent. Family disagreement over the care process fuels the sense that things are breaking apart.

Caregiver support is so necessary. As a caregiver, it is important that you prioritize yourself through the process. Therapy is one possibility for support, and there are also so many groups available for you to get to meet with peers going through the same thing.